GM1 Gangliosidosis is a fatal, degenerative disorder that attacks the brain and spinal chord in children. Our boys, Eli and Evan both have the disorder. We share how we learn, cope, live, and love throughout our journey.
Saturday, November 22, 2014
Eli in the Kindergarten Community Helpers Parade
Each year in October, our Elementary school holds a parade where the kindergartners dress up as a community helper and march through the school in a parade. Eli's teacher, Mrs. Beck, was thinking that Mrs. Bowles would just push Eli in his stroller, but Mrs. Bowles (Eli's Para-pro aide) told her that Eli could do it! I'm so glad she had faith in him, because I was expecting to find him being pushed down the sidewalk and it was so nice to see him walking! Here is a video of Eli in the Parade. It isn't easy for him to push his walker that far, but he makes it to the end with lots of help and cheers from everyone. Great job Eli!!