GM1 Gangliosidosis is a fatal, degenerative disorder that attacks the brain and spinal chord in children. Our boys, Eli and Evan both have the disorder. We share how we learn, cope, live, and love throughout our journey.
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Thursday, September 24, 2015
Video clips from Eli's 3rd year! Such a good dancer!
Video clips from Eli's 3rd year, filmed March 2012 to March 2013. Eli has the Late infantile or Type 2 version of GM1 Gangliosidosis (a lysosomal storage disease), but has not been diagnosed at this point yet. Go to www.Gm-123.org to learn more.
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