GM1 Gangliosidosis is a fatal, degenerative disorder that attacks the brain and spinal chord in children. Our boys, Eli and Evan both have the disorder. We share how we learn, cope, live, and love throughout our journey.
I actually think Eli was 15-16 months in this video, so somewhere around there. He is talking, walking, playing, jumping, crawling, and being such a cutie!
