As a special series for Rare Disease Day (February 28) I decided to put together a presentation about GM1. This was meant to educate and give people a basic understanding of all aspects of this disorder and hopefully raise some awareness and funds for GM1 research.
The first half of the presentation addresses the following topics: Rare Disease Day - What is GM1? - Symptoms of GM1 - Living with GM1.
The second half of the presentation covers the following topics: Cure GM1 Foundation - GM1 Research/clinical trials - How to seek and give support to families with GM1
Here is our summary video of our experience with GM1 leading up to Rare Disease Day
