Check out our new website http://www.gm-123.org/
dedicated to GM1 Gangliosidosis, as well as Gm2 Gangliosidosis or Tay Sachs and Sandhoff. Brad's been designing the website and I've been collecting stories, info and news for it for the past few months.
Here is a direct link to some stories of children who have these disorders.
http://www.gm-123.org/stories
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